Our wheel chair saga is not over. (Omgosh, is wheelchair one word or two? I'm pretty sure I type it differently every time I write it!)
Nate had another fitting today, with the new wheels. The guy came two and a half hours early. Just as Nate was going down for a nap. And then when Ryan put him in his
red chair, he started crying. Not a good sign. Long story short-wheels are better but there is a problem with the seat height now. Which requires some little tool thingey that the guy (surprise, surprise) didn't have with him. So we are set up again for the
end of next week.
Sigh.
Later after I got home I was talking to Nate about his red chair. I asked him, "Did you like your red chair?" His response? "Like the blue chair."
And continuing the fun...the bladder test I mentioned the other day turned out to be just a renal ultrasound. Which I knew was not right as soon as Ryan and Nate left Children's and were headed home. A few phone calls confirmed that he also needed a video-urodynamics (which fills his bladder with a saline solution to see how much it can hold, while taking a video to see at what point there is reflux to the kidney-or that's at least how I understand it-we've never had this procedure before).
So, it's back to Children's on Nov. 3rd for the correct test. Trying to set up clinic for Nov. 16th. Feeling anxious about it all.
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I am
incredibly behind in pictures. Stay tuned for pumpkin patch, fall photo shoot and happy-to-be-reunited-with-Aunt-Gina pics (she is officially HOME as of a half hour ago!!! No more two and a half hour flight to visit her in Orlando-now it's just a two and a half hour drive to Milwaukee!!!)
PS-I can't find the cord that connects the camera with the video to the computer so I can't upload video of him in his chair just yet. Please let this picture serve as a replacement for now! :)