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Showing posts with label wheel chair. Show all posts
Showing posts with label wheel chair. Show all posts

November 05, 2011

Halloween

This was from Trunk or Treat at our church Friday night.  Thanks to Grandma D we were the second ones in line and didn't have to wait in line for 2 freezing hours like last year.
I had fun incorporating Nathan's chair with his costume this year.  It's amazing what you can do with some cardboard and a couple cans of spray paint. It's something I plan to do in the years to come, as long as he is using it.  I kept talking about it in the days leading up to Halloween weekend, but he didn't see it all put together until we went to trunk or treat.  I got it ready while he was still in the car and when I brought him out to show him he was really excited.  He said, "Wook!  It's my digger, like Scoop!"  I was inspired by another mom and was happy to find that there were several awesome wheelchair costumes including a spaceship, ice cream truck, Thomas train, and Batmobile (check out Caleb's Batmobile here).

This was from Nate's preschool Halloween party.  Notice the construction worker with his hands over his ears. 

Baby's first Halloween.  He's growing up too fast!

And the best part of Halloween?  Nathan actually requested to hold his little brother!

June 09, 2011

Indianapolis

For spring break we took a mini vacation to Indianapolis.  Just the three of us.  Hard to think that our days of being "just the three of us" are numbered! We stayed just outside of the city and checked out the Children's Museum and the zoo.  We also did a little bit of hanging around the hotel, swimming and relaxing. It was a great little trip.

Nate being silly after getting out of the pool

This is pretty much where we realized he loves dinosaurs.  Of all the things to do and see in the Children's Museum, he could have stayed at this dino table all day.  
He actually cried when we moved on! 
   The museum was huge.  He enjoyed the train table, making a boat and watching it sail, and this hall of mirrors.  The sand...not so much.  Still having some tactile issues with the stuff.

 I thought this was funny.  His face when he wheeled up to Bumble Bee from Transformers.  Look at how little he is compared to the 12 ft robot!
   This was the first time we took his chair to the zoo.  It was great except for I was paranoid that he was going to get his hands caught in the spokes while we pushed.  It allowed him some freedom though, and at one point we just let him go wild in an empty court yard.  I also found out how dirty zoos are. His hands, arms and elbows were covered in dirt.  Time to invest in some gloves and possibly some elbow pads.
It was such a fun trip!  Hoping to have one more family vacation to Michigan this summer.  Then it will be "just the 4 of us" :)

February 19, 2011

Friday nights at Target

I simply can not put into words my love for Target (and I know you all know what I mean!)  I have been making a habit out of taking Nate there on Friday nights every now and then just to let him explore and have lots of room to wheel around in his chair.  I was worried about the reactions I might get at first, but they have all been positive (duh, it's Target nothing bad ever happens there!)

Here are a few pics from one of our trips (where we now get front row parking with our handy dandy handicap placard!)



(I only took these three pictures.  I thought that a two year old in a little wheel chair was enough to make people stare without his momma snapping pictures like the paparazzi.  I think I just need to get over it, though!)

December 26, 2010

A Kismis Powdee

Nate was so excited about this-he kept talking about the "Kismis Powdee" we were going to.



It was at an old roller rink, so there was plenty of open space for him to get around. He loved it!



Gramma came, too.





He made ornaments,



played basketball,





and saw Santa. He wasn't so sure about him-I'm not sure he even really looked at him. We don't really do the Santa thing anyway-meaning we don't go through all the hoops to tell Nate that he is real. We just treat him as a kind of fun Christmas character.



He had so much fun! We'll definitely do it again next year!

December 14, 2010

Solution: Ikea and a 3 letter word

Nate is doing really well with his wheel chair. Although the transition from the small loaner one to his bigger one was a little sketchy at first, he has adapted beautifully. I haven't had much opportunity to get him out into big, open spaces much but when I do he just goes! Recently my mom and I took him to a Christmas party through his therapy place, and it was at an old roller rink. There was no skating so all the kids were flying around on adaptive bikes and their wheel chairs. I don't think I've ever seen Nate go so fast in his chair! Pictures to come.

One thing I noticed right away that we were having trouble with was finding a place for Nate to play while he was in his chair. He was too low to roll up to the dining room table, and too high to roll under a coffee table. We tried the couch or a chair but those were awkward and he ended up playing off to the side or bending down really far to play.

Solution: Ikea.

We found this table there that adjusts to three heights, the tallest being the perfect height for his chair. The great thing is that we can also lower it so he can practice sitting in a little toddler chair at the table, too. It's worked like a gem and gives him a great place to play.








We have also been working hard practicing walking in his RGOs. I use the word walking loosely right now. He doesn't really have much interest in doing what it takes to actually walk himself (which, in his defense, is a series of several steps in succession and is probably a lot for him to remember). To get him motivated, I bribed him with stickers. If he walks to the end of the hallway (which is not a short distance-all the way across the living room and down the long hall to his room) he gets to pick a sticker to put on his walker. I only had Sesame Street stickers so far, but recently also got dinosaurs and sports stickers which he was really excited about. It seems to be working...a little. Still not really motivated. But we are working on it. We try to get him to walk the hall twice a day (once with me and once with Ryan). Depending on our schedules that doesn't always happen, though.



Today Ryan took him to a Children's Memorial satellite campus in New Lenox. It's still about a 45 min drive, but a much smoother ride than driving into the city. Our Ortho thought it might be a good idea for Nate to have a therapy session with someone who has worked with kids his age in RGOs before (our PT has only worked with one other kid who had RGOs and he was much older). I think Ryan and I were hoping this PT would have some miracle advice for us, but no such luck. Nate had pretty much the same session as he does with is EI therapist. But any practice is good practice. We'll just keep plugging along.

And in closing, I just had to post this. Tonight I was putting some clothes away while Nate was playing with is word builder (which he is very fascinated with lately).



He will sit there for the longest time, trying a different trio of letters to see if it will sing the song to tell him he made a word. When he finally got a word and I looked to see what it was, this is what I found



I thought it was really cute, and Nate was pretty excited, too!

The Burnett household is nothing short of crazy right now, but this Friday I look forward to having 16 days off!!! Hopefully I can finally catch up on some blogging!

November 15, 2010

That's right



My new favorite place to play is in the lazy susan.



There isn't anything I could get into trouble with in here. No oils I could spill or glass spice bottles I could break or big containers of flour I could dump everywhere. Nope, none of that.


He is starting to get into everything. AND I LOVE IT.

November 04, 2010

Finally

It's here, in all it's red glory!



I was worried that Nate wouldn't like it because it was so different from his loaner one. But he didn't seem to mind a bit. We put the new wheels on and the guy couldn't even get the plastic off of them before Nate was tearin' it up.



He's finally able to look out the window himself-the old one was too low.







Aaaand I finally found the cord to upload video! Hooray! This is one I took today...it's not much because my battery died. I just can't get a break with this thing.

***UPDATE*** I just tried to upload the video TWICE and it won't load! AAaaaaahhhhhh!!!

October 26, 2010

And so it continues...

Our wheel chair saga is not over. (Omgosh, is wheelchair one word or two? I'm pretty sure I type it differently every time I write it!)

Nate had another fitting today, with the new wheels. The guy came two and a half hours early. Just as Nate was going down for a nap. And then when Ryan put him in his red chair, he started crying. Not a good sign. Long story short-wheels are better but there is a problem with the seat height now. Which requires some little tool thingey that the guy (surprise, surprise) didn't have with him. So we are set up again for the end of next week.

Sigh.

Later after I got home I was talking to Nate about his red chair. I asked him, "Did you like your red chair?" His response? "Like the blue chair."

And continuing the fun...the bladder test I mentioned the other day turned out to be just a renal ultrasound. Which I knew was not right as soon as Ryan and Nate left Children's and were headed home. A few phone calls confirmed that he also needed a video-urodynamics (which fills his bladder with a saline solution to see how much it can hold, while taking a video to see at what point there is reflux to the kidney-or that's at least how I understand it-we've never had this procedure before).

So, it's back to Children's on Nov. 3rd for the correct test. Trying to set up clinic for Nov. 16th. Feeling anxious about it all.


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I am incredibly behind in pictures. Stay tuned for pumpkin patch, fall photo shoot and happy-to-be-reunited-with-Aunt-Gina pics (she is officially HOME as of a half hour ago!!! No more two and a half hour flight to visit her in Orlando-now it's just a two and a half hour drive to Milwaukee!!!)

PS-I can't find the cord that connects the camera with the video to the computer so I can't upload video of him in his chair just yet. Please let this picture serve as a replacement for now! :)