October is spina bifida awareness month.
I'll admit, I've slacked this month (yes, I do realize this is the very
last day of October). But I've been at a loss for words about what I want to say about awareness. I know that awareness has saved lives. Literally. I know of several cases where a mother decided not to abort because of a blog, video or group she found. I know awareness helped me to find an incredible group of moms who encourage and support each other and their children every step of the way. One of those moms wrote up a little something that was everything I wanted to say but couldn't think of. Thanks,
Joanna.
You should be aware that having a child with SB may cause increased motivation to help others, a new-found perspective in times of trial, a desire to enjoy the little things and commitment to change the way the world defines "disability". Studies show that raising a child with SB will induce strong feelings of gratitude for even the simplest of milestones and produce a willingness to do anything, talk to anyone, try any method necessary to make life better for your child. Side effects include feelings of worry, fear, uncertainty, and anger but are tempered with love, faith, determination and hope. Having a child with SB is not easy...but loving one is.
I think that says it all.
