Showing posts with label standing. Show all posts
Showing posts with label standing. Show all posts
September 12, 2010
Baby steps
We got a loner walker today (and the one we ordered through insurance should be in very soon). We are armed and ready for Wednesday's PT appointment where Nate will hopefully start learning how to use his equipment to WALK. We realize that this is going to be a slow process and, although he is two, we will be taking baby steps. It's still exciting all the same. Nate seems to be excited, too. If he sees his RGOs, he will point and say "legs" which is what we have been calling them. Then he'll say "Put legs on." I'll follow with "What do you want to do when we get them on?" and his reply is, "Stand. Walk." He is so patient while we put them on and doesn't seem to mind them at all! Here are some pics of daddy helping him walk (we aren't so good at it just yet-you can see how much he is leaning-but we're working on it!)
August 29, 2010
New things
School started again and I have one word for that: Boo.
It's been a hard transition. I went from getting things done to not getting anything done at all. And of course I lost time with my precious little guy which is killing me. Especially missing most of his therapy appointments. No more water therapy or hippo for mom. Boo. Thank goodness for my mother-in-law and sister who have been helping us out while Ryan is still working midnights. Otherwise the transition back to work would have been that much more traumatic. So thankful for family!
I have some pictures of Nate doing some new things in his RGOs. We are still waiting on a walker so we haven't been able to really practice walking just yet. We have one ordered and are hoping it arrives soon. For now we have been practicing standing in them. We already had to have some tweaking done (he was leaning to his left) but things seem to be good now. Aside from playing at his sand and water table (mostly just the water part-he is NOT a fan of sand) we have been playing with playdoh at the coffee table, using window markers to draw on the patio doors, standing and looking out the front window and picking out books off the TOP shelf of his bookcase. Oh yes, lots of new things!
It's been a hard transition. I went from getting things done to not getting anything done at all. And of course I lost time with my precious little guy which is killing me. Especially missing most of his therapy appointments. No more water therapy or hippo for mom. Boo. Thank goodness for my mother-in-law and sister who have been helping us out while Ryan is still working midnights. Otherwise the transition back to work would have been that much more traumatic. So thankful for family!
I have some pictures of Nate doing some new things in his RGOs. We are still waiting on a walker so we haven't been able to really practice walking just yet. We have one ordered and are hoping it arrives soon. For now we have been practicing standing in them. We already had to have some tweaking done (he was leaning to his left) but things seem to be good now. Aside from playing at his sand and water table (mostly just the water part-he is NOT a fan of sand) we have been playing with playdoh at the coffee table, using window markers to draw on the patio doors, standing and looking out the front window and picking out books off the TOP shelf of his bookcase. Oh yes, lots of new things!
August 18, 2010
February 17, 2010
Neuro
Tomorrow night is the big sleep study. I mostly dread these because I enjoy sleeping in my own bed and theirs is far from comfortable. Nate was a real trooper last time-slept the whole night in lieu of all the cords stuck to his head and chest. The only part he really didn't like was when the nurses wrapped his head with gauze to keep all the wires they stuck to his head in place. That is really the only problem I foresee. Maybe I should stop jinxing myself.
Our appointment with the neurologist to go over the sleep study is next Wednesday. We also plan on having a nice long discussion about Nate's hand "mirroring". Our OT is looking for some sort of explanation and we are both hoping that we can get it from him. Unfortunately, his bedside manner leaves much to be desired. I always dread going to see him (and it's been nearly a year because of it). Nate, being the smart little guy he is, has started compensating to be able to do things his hands, for some unknown reason, won't let him do. For example, if he wants a better grip on a toy he is holding he will either put it against his chest or bring it to the floor and re grip.
Here are a couple pictures I took while I was trying to get him to break apart some toy links. He could do it if he grabbed them at the same time-but wasn't able to if I only let him hold it in one hand at first. His other hand would come over to gold it but his tiny fist wouldn't open (because the other was firmly wrapped around the links and what one hand does the other does). This probably doesn't make sense. On with the pictures.
In this post I mentioned that our OT was thinking about casting to get Nate to differentiate between his hands. Thank goodness we found an air cast to use-we had actually been talking about hard casting. The thought process behind this is that by forcing his hands to differentiate he will be able to build new neuro pathways that will allow him to eventually do it on his own. Curious to see what his neurologist says about this theory (although it makes perfect sense to me).
This deadpan stare his is giving is because when I took this photo he was intently watching his "baby can read" video. It helps pass the time while he is in his stander.
I do occasionally see him do things that make me take a second look-things that I don't normally see him do because he doesn't differentiate. We've been seeing some good side sitting and playing (sitting with one arm supporting himself and the other playing with a toy) which is a sign of progress. If you think of it, please keep us in your prayers this week and next. First and foremost, for wisdom for the doctors (especially neurology) and peace for Ryan and I as we go back to the place we dread the most. I've got some new and some exciting things to post about soon (Nate related-so don't go starting any pregnancy rumors!). I'll try to be more prompt in posting the results when we get them next week!
Our appointment with the neurologist to go over the sleep study is next Wednesday. We also plan on having a nice long discussion about Nate's hand "mirroring". Our OT is looking for some sort of explanation and we are both hoping that we can get it from him. Unfortunately, his bedside manner leaves much to be desired. I always dread going to see him (and it's been nearly a year because of it). Nate, being the smart little guy he is, has started compensating to be able to do things his hands, for some unknown reason, won't let him do. For example, if he wants a better grip on a toy he is holding he will either put it against his chest or bring it to the floor and re grip.
Here are a couple pictures I took while I was trying to get him to break apart some toy links. He could do it if he grabbed them at the same time-but wasn't able to if I only let him hold it in one hand at first. His other hand would come over to gold it but his tiny fist wouldn't open (because the other was firmly wrapped around the links and what one hand does the other does). This probably doesn't make sense. On with the pictures.
In this post I mentioned that our OT was thinking about casting to get Nate to differentiate between his hands. Thank goodness we found an air cast to use-we had actually been talking about hard casting. The thought process behind this is that by forcing his hands to differentiate he will be able to build new neuro pathways that will allow him to eventually do it on his own. Curious to see what his neurologist says about this theory (although it makes perfect sense to me).
This deadpan stare his is giving is because when I took this photo he was intently watching his "baby can read" video. It helps pass the time while he is in his stander.
I do occasionally see him do things that make me take a second look-things that I don't normally see him do because he doesn't differentiate. We've been seeing some good side sitting and playing (sitting with one arm supporting himself and the other playing with a toy) which is a sign of progress. If you think of it, please keep us in your prayers this week and next. First and foremost, for wisdom for the doctors (especially neurology) and peace for Ryan and I as we go back to the place we dread the most. I've got some new and some exciting things to post about soon (Nate related-so don't go starting any pregnancy rumors!). I'll try to be more prompt in posting the results when we get them next week!
February 03, 2010
November 14, 2009
October 07, 2009
September 17, 2009
Happy stander
Army clawling. Check. Pushing up onto all fours. Check. Sitting unsupported. Check. He is working right down the list, and it seems that lately there is no stopping him! So we are moving on to bigger things, like working on standing. Nate can't bear weight in his legs...yet. We are hoping that is what the stander will teach him. It was so awesome to see him in an upright position for the first time! Our wonderful pool therapist, Nancy, was generous enough to let us borrow this stander until we can get our own. The goal is to have him stand in it for about an hour twice a day. Our PT, Toni, said that some kids don't tolerate it very well at first. And we all know how Nathan can be...tempermental, fussy, whiney and lazy. Yup, that's our boy. Ha! Take a look!
He looks like he is really upset about it, doesn't he? ;)
Today I took him in to get measured and casted for his AFOs (Ankle Foot Orthosis). They actually cast his legs to make the braces. The man who was doing the measuring and casting couldn't believe how calm and cool Nathan was...said he was the best patient of the day! Nate was very interested in the whole process...perhaps a little too interested since he was grabbing at tools and such. :) My goal was to take pictures of the entire process, but Nate ended up sitting on my lap while he was being casted while I flipped through a book with pattern options. From what I understand from other SB moms, picking out the pattern for the straps is a big deal. It's all about the pattern. I think I made a good choice...it wasn't in the book but they do custom stuff and were happy to oblidge. Guess you all will have to wait two weeks until they are ready to see! I bet the suspense will be unbearable!
He looks like he is really upset about it, doesn't he? ;)
Today I took him in to get measured and casted for his AFOs (Ankle Foot Orthosis). They actually cast his legs to make the braces. The man who was doing the measuring and casting couldn't believe how calm and cool Nathan was...said he was the best patient of the day! Nate was very interested in the whole process...perhaps a little too interested since he was grabbing at tools and such. :) My goal was to take pictures of the entire process, but Nate ended up sitting on my lap while he was being casted while I flipped through a book with pattern options. From what I understand from other SB moms, picking out the pattern for the straps is a big deal. It's all about the pattern. I think I made a good choice...it wasn't in the book but they do custom stuff and were happy to oblidge. Guess you all will have to wait two weeks until they are ready to see! I bet the suspense will be unbearable!
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