The waiting game

I called exactly 6 weeks after we ordered it. And, surprisingly, it was in.

So we went to pick it up. And when they wheeled it out, it was red. Red, as in the opposite of blue which is what we ordered.

And then there was this little problem where Nate could barely reach the wheels. So we ordered bigger ones. And made an appointment for the following week. Which was cancelled. And rescheduled. And cancelled again. We are hoping and praying that this Tuesday's appointment will finally be the one where Nate gets his chair. His red chair.

Sigh.

Here is a picture of it from our first appointment.





Fortunately they did have a loaner chair they let us use so Nate has been tearin' up the town in that one. It's actually the first model we were going to order but had second thoughts about due to how small it is. He barely fits into it now, and it won't allow much room for growth so I'm glad we went with the bigger one. Although he is learning to maneuver the loaner one quite well and it is low enough that he is able to pick up things he drops on the floor. Anxious to see what challenges his new one will bring. Today we took him out in public for the first time (to church) and he had a ball. Everyone was so impressed with how well he gets around.

In other news, Ryan is taking Nate downtown to Children's tomorrow for a bladder test. This was one that was scheduled to determine if his bladder function is deteriorating which will help decide if he needs a detethering surgery. We need to follow up with a clinic appointment next month. This is more of a waiting game...waiting to see what the text results say and whether Nate will need another surgery. We have been trying not to think about it for the past several weeks but it's been like the big elephant in the room. Hoping for positive test results that will buy us some more time.

Took some video of him in his chair-going to post soon!